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This is an assortment of links recommended by a variety of sources.  Prairie is simply passing on information from some of our clients who found this information helpful in their lives.  We hope this information is beneficial to you as well.

Ability Hub is for folks with a disability who find working with a computer difficult.  The website will direct one to adaptive equipment alternative methods available to access computers.

Childhood Stroke & Hemiplegia Connections of Illinois  is a support and information group.

Creative Mobility is a bicycle shop that customizes bicycles for disabled people.

Families of Spinal Muscular Atrophy has an excellent site with in depth information on the disease, the research involved with finding a cure, support for families, and much more.

Foot Funnel is a device for one handed shoe donning.  It keeps the counter of the shoe from collapsing while the AFO is being put into the shoe.

Walk Easy sells a variety of good quality crutches and canes for children and adults.

Hatchback Shoes are a unique design for pediatric users of SMOs and AFOs.  The soles tend to be overly flexible, but they are easy to don.

Keeping Pace  sells shoes for children who wear Ankle Foot Orthoses.  It is a small enterprise started by two mothers whose children wear Ankle Foot Orthoses. They were simply tired of looking for good quality shoes for their children, so they started the company.   Ordering shoes over the web is possible.  

Keys to Parenting a Child With Cerebral Palsy is a book was written by Jane Faulner Leonard, P.T., M.S.H.P. who has cerebral palsy herself.  It is an excellent resource.  The jacket of the book states, "Raising a child with cerebral palsy can be a challenging but enlightening journey.  Here's a practical resource for parents who wish to understand cerebral palsy, deal with their feelings, balance family relationships, and plan for their child's future.  Here, too, is advice on finding resources and developing a child's full potential.  This guide is filled with encouragement for parents as they work toward integrating their child into society." 

Midwest Mobility and Design adapts vehicles for the disabled.  They are located in Schaumburg, Illinois. 

National Center on Physical Activity and Disabiltiy works to promote health benefits among people with disabilites and health conditions throught increased participation in all types of physical activity. These may include recreational programs, specific sports, exercise techniques, fitness activies, adaptive equipment, and more.  NCPAD is the premier resource for information on physical activity, health promotion, and disabiltiy.  This is a unique and excellent resource.

NEOS Overshoes fit well over lower extremity orthoses and prostheses for inclement weather.  These were recommended by a client years ago.  The problem was getting the child into boots while wearing the AFOs.  The Neos saved the day.  Neos stands for New England Over Shoes.

Pathways Awareness has a nice site of normal physiologic development for infants.

Smartknit AFO socks and Smartknit socks with X-static have been found very useful by many.  For those who do not need 
AFO socks but would like to try X-static socks try Amazingsocks.com.

For those interested in just a liner for the AFO try Smartknit AFO LINER.

Wide Shoes  is a site that sells literally "wideshoes" for men.

Women who have hemi pelvectomy or hip disarticulation amputations have special considerations concerning pregnancy.  This 
link is by a female physcian who has a hemi pelvectomy and experienced pregnancy http://www.hphdhelp.org/

WSANA Links is a page listing with a variety of links including travel accessibilty, Chicago Transit assistance, International Travel recommendations, Extended Home Living Services, and more.

X-static - "The Silver Fiber" is a material now available in socks for wear under orthoses and prostheses.  The material is anti-microbrial, all natural, anti-static, thermoconductive and therapeutic.  We have many clients who report a dramatic eliminaltion of perspiration in their orthosis, the orthosis feels much much cooler - we always ventilate plastic devices whenever possible. 

Zappos has a huge variety of shoes for children and adults.  Navigating this site is easy.  Many parents like Tsukihoshi shoes for lightness and styles.

AFO Tuning Info:

Use of an Ankle Foot Orthosis to Optimize Hip and Knee Biomechanics Following Stroke (Bowers and Meadows)

Tuning of AFO-Footwear Combinations for Neurologic Disorders (Owen, Bowers, Meadow)

Copy of Abstract Published in Gait and Posture 2004 (Owen)


Power Point Presentations:

Orthotic Considerations in the SMA Population presented 9-11-08 at AOPA

Childhood Stroke and Hemiplegia Presentation

Orthotic Considerations in the 0 - 3 Population  

Orthotic Considerations in Spina Bifida

Orthotic Considerations in the SMA Population

Orthotic Considerations in SMA for Orthotists















      

Copyright 2005 Donald McGovern. All rights reserved.